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My Bone Marrow Transplant

Pain is inevitable, suffering is optional.

Hair is growing on my upper lip and chin. Not much, but it is encouraging after weeks of having a face as smooth as the proverbial baby’s bottom. There is a little bit of bum fluff on my cheeks as well! I might have to start shaving again soon!

A transplant is for life, not just for Christmas. This just popped into my head today, I guess the fact that I engrafted on Christmas Day has been stirring around in my subconscious.

I’ve been on the ACOR GVHD list server following a thread about GVHD of the Lungs. Not nice, even the treatments have serious side effects. One to avoid if possible. Another thread was started by a woman about her Skin GVHD which has reoccurred 4 years after her transplant. She has no rashes but the dark, burnt looking, skin which I have on my back and upper chest. Mine is clearing up quite quickly now. Sobering to think it can reoccur after such a long time.

A Qi Gong session this morning then Josep and Monica came to visit in the afternoon. Josep knows I love Opera and he gave me a CD of Cecilia Bartoli singing arias by Gluck. I can listen to her while enduring the long waits in the hospital.

We walked 2.3Km this evening. It is getting much warmer and a lot more humid so breathing was more difficult and I sweated more.


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