Skip to content

My Bone Marrow Transplant

Pain is inevitable, suffering is optional.

Monthly Archives: June 2013

It’s been 18 months since the transplant and I’m still here! I don’t feel able to say that I am going strong, because I suffer from fatigue. I have been corresponding with a lady in the USA who had to give up work because of the fatigue, luckily I can still cope. She is on a much higher dose of prednisone than I am; I know from experience that if I was on that dose I would be fine. However, my drug dosages continue to be reduced; ciclosporin is now 40mg per day and the dreaded prednisone is 2.5mg per day. I’ve been experiencing some low level bone pain, mostly in my legs and hip bones.

Next week I have a check up in Hong Kong which I think will be OK. As usual when I am about to have a check up I start to feel anxious and every little thing that I feel or happens can alarm me briefly.


Armstrong Economics

Forecasting the World

The Blog

Pain is inevitable, suffering is optional.

Waddling Tales

Tales of a slow runner with cancer

MDS journey

MDS Journey to health

Tallbloke's Talkshop

Cutting edge science you can dice with

To do: 52

Venturing out of the comfort zone

Madsen Pirie

Just another weblog

Climate Audit

by Steve McIntyre

Bishop Hill

Pain is inevitable, suffering is optional.

Watts Up With That?

The world's most viewed site on global warming and climate change

Guido Fawkes

Parliamentary plots and conspiracy