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My Bone Marrow Transplant

Pain is inevitable, suffering is optional.

It’s been 18 months since the transplant and I’m still here! I don’t feel able to say that I am going strong, because I suffer from fatigue. I have been corresponding with a lady in the USA who had to give up work because of the fatigue, luckily I can still cope. She is on a much higher dose of prednisone than I am; I know from experience that if I was on that dose I would be fine. However, my drug dosages continue to be reduced; ciclosporin is now 40mg per day and the dreaded prednisone is 2.5mg per day. I’ve been experiencing some low level bone pain, mostly in my legs and hip bones.

Next week I have a check up in Hong Kong which I think will be OK. As usual when I am about to have a check up I start to feel anxious and every little thing that I feel or happens can alarm me briefly.

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